A Heavy Heart

Our vacation was very nice and I will tell all later, but right now I have a very heavy heart for some friends from church. They have too boys who have a disease called metachromatic leukodystrophy (a disease that affects the muscles of your body among other things). One of the boys is about 13 and the other is about 3. The youngest son has had a stem cell transplant and bone marrow transplant is doing a little better at this time but in the hospital at Duke University. The mom lives in Duke at a hospital apartment with other family "filling in" to help her. The dad and the other son live here in Cleveland, with visits back and forth, which must be terribly exhausting on everyone. It has been this way since November 2006 (I think--maybe before).

Anyway, the oldest son Caleb, was flown by helicopter last week to our local children's hospital because he stopped breathing. They released him, but he had to be flown back last night because he again stopped breathing. At this time, he is on a ventilator and with fever. They believed he has had some seizures also. A local business man made arrangments to have the uncle flown to Duke to stay with Levi and bring the mom back to be with Caleb.

Please pray for this family. They have stood on God's word and His promises throughout these two boys lifetime. Only God knows what His will is for Caleb and Levi, but I pray that no matter what He will hold the family close to Him for strength, wisdom in decisions, grace, and mercy.

Here is there website if you would like to check out more information.
http://www.caringbridge.org/nc/levijohnson/